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Observational Study of Pediatric Rheumatic Diseases: The CARRA Registry

Rheumatic Joint Disease

Continuation of the CARRA Registry as described in the protocol will support data collection on patients with pediatric-onset rheumatic diseases. The CARRA Registry will form the basis for future CARRA studies. In particular, this observational registry will be used to answer pressing questions about therapeutics used to treat pediatric rheumatic diseases, including safety questions.

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Conditions de participation

  • Sexe:

    ALL

  • Âges admissibles:

    0 to 21

Critères de participation

Inclusion Criteria:

1. Onset of rheumatic disease prior to age 16 years for JIA and onset prior to age 19 years for all other rheumatic diseases (see appendix A).
2. Subject (and/or parent/legal guardian when required) is able to provide written informed consent and willing to comply with study procedures.
3. Subject and/or parent/legal guardian is willing to be contacted in the future by study staff.

Exclusion Criteria:

1. Greater than 21 years of age at the time of enrollment.

Lieu de l'étude

IWK Health Center
IWK Health Center
Halifax, Nova Scotia
Canada

Contactez l'équipe d'étude

Primary Contact

Victoria Westheuser

[email protected]
902-470-7414
University of Manitoba - Children's Hospital of Manitoba
University of Manitoba - Children's Hospital of Manitoba
Winnipeg, Manitoba
Canada

Contactez l'équipe d'étude

Primary Contact

Ramandeep Kaur

[email protected]
The Hospital for Sick Children
The Hospital for Sick Children
Toronto, Ontario
Canada

Contactez l'équipe d'étude

Primary Contact

Ingrid Goh

[email protected]
416-813-6372
University of Calgary - Alberta Children's Hospital
University of Calgary - Alberta Children's Hospital
Calgary, Alberta
Canada

Contactez l'équipe d'étude

Primary Contact

Tiffany Tse

[email protected]
403-955-5537
Étude parrainée par
Duke University
Participants recherchés
Plus d'informations
ID de l'étude: NCT02418442