Observational Study of Pediatric Rheumatic Diseases: The CARRA Registry
Rheumatic Joint DiseaseContinuation of the CARRA Registry as described in the protocol will support data collection on patients with pediatric-onset rheumatic diseases. The CARRA Registry will form the basis for future CARRA studies. In particular, this observational registry will be used to answer pressing questions about therapeutics used to treat pediatric rheumatic diseases, including safety questions.
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Participation Requirements
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Sex:
ALL -
Eligible Ages:
0 to 21
Participation Criteria
Inclusion Criteria:
1. Onset of rheumatic disease prior to age 16 years for JIA and onset prior to age 19 years for all other rheumatic diseases (see appendix A).
2. Subject (and/or parent/legal guardian when required) is able to provide written informed consent and willing to comply with study procedures.
3. Subject and/or parent/legal guardian is willing to be contacted in the future by study staff.
Exclusion Criteria:
1. Greater than 21 years of age at the time of enrollment.
Study Location
IWK Health Center
IWK Health CenterHalifax, Nova Scotia
Canada
Contact Study Team
University of Manitoba - Children's Hospital of Manitoba
University of Manitoba - Children's Hospital of ManitobaWinnipeg, Manitoba
Canada
Contact Study Team
The Hospital for Sick Children
The Hospital for Sick ChildrenToronto, Ontario
Canada
Contact Study Team
University of Calgary - Alberta Children's Hospital
University of Calgary - Alberta Children's HospitalCalgary, Alberta
Canada
Contact Study Team
- Study Sponsored By
- Duke University
- Participants Required
- More Information
- Study ID:
NCT02418442