Pediatric Pulmonary Hypertension Network (PPHNet) Informatics Registry
Pulmonary Arterial Hypertension | Pulmonary Vascular DiseasePatients are being asked to be in this research study because medical researchers hope that by gathering information about a large number of children with pulmonary hypertension over time, their understanding of the disease process will increase and lead to better treatment. Investigators believe that pulmonary hypertension in children is different than pulmonary hypertension in adults and this study will help us understand those differences.
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Conditions de participation
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Sexe:
ALL -
Âges admissibles:
1 to 21
Critères de participation
Inclusion Criteria:
* The subject's age of onset of pulmonary hypertension must be prior to age 18 years
* The person providing consent must be able to read either Spanish or English.
* The subject (and/or parent/legal guardian) must be able to provide informed consent
Exclusion Criteria:
* Diagnosed with pulmonary hypertension after age 18
* Refusal to sign informed consent
Lieu de l'étude
University of Alberta Edmonton
University of Alberta EdmontonEdmonton, Alberta
Canada
Contactez l'équipe d'étude
- Étude parrainée par
- University of Colorado, Denver
- Participants recherchés
- Plus d'informations
- ID de l'étude:
NCT02249923