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Pediatric Pulmonary Hypertension Network (PPHNet) Informatics Registry

Pulmonary Arterial Hypertension | Pulmonary Vascular Disease

Patients are being asked to be in this research study because medical researchers hope that by gathering information about a large number of children with pulmonary hypertension over time, their understanding of the disease process will increase and lead to better treatment. Investigators believe that pulmonary hypertension in children is different than pulmonary hypertension in adults and this study will help us understand those differences.

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Participation Requirements

  • Sex:

    ALL

  • Eligible Ages:

    1 to 21

Participation Criteria

Inclusion Criteria:

* The subject's age of onset of pulmonary hypertension must be prior to age 18 years
* The person providing consent must be able to read either Spanish or English.
* The subject (and/or parent/legal guardian) must be able to provide informed consent

Exclusion Criteria:

* Diagnosed with pulmonary hypertension after age 18
* Refusal to sign informed consent

Study Location

University of Alberta Edmonton
University of Alberta Edmonton
Edmonton, Alberta
Canada

Contact Study Team

Primary Contact

Angela Bates, MD

[email protected]
Study Sponsored By
University of Colorado, Denver
Participants Required
More Information
Study ID: NCT02249923