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Examining intersections of biographies & biologies: diversity & outcomes of people with multiple sclerosis in Canada (iBio2Div-MS)

Multiple Sclerosis | Immigrant

Each person’s experience with multiple sclerosis (MS) is different. These differences are likely due to a mix of factors. Examples of some of these factors are a person’s sex, gender, age, ethnicity, and if they live in a city or not. Together, these factors contribute to a person’s diversity. Past MS research has not included people who are diverse. Yet some diversity factors can affect the health of a person with MS. Currently, researchers are unsure which diversity factors affect health the most. This in turn limits access to the right types of support and care.

The purpose of this study is to find out how genes, diversity traits, and life experiences affect the health of people with MS compared to people without MS. The study’s long-term goal is to improve health in people with MS who have not been included in past research. If you agree to participate, you will be asked to complete 4 phone interviews that are 60-90 minutes long, each one year apart. The interview will ask questions about your diversity traits and your physical, emotional, and social health and function. The interviewer will also assess your physical and mental function. You will also give a saliva sample by mail. You will be compensated for your time.

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Participation Requirements

  • Sex:

    Male, Female, Intersex

  • Eligible Ages:

    18 and up

Participation Criteria

Inclusion Criteria:
You can participate if you are:
1) aged 18 years or older,
2) able to do phone interviews in English,
3) live in Canada
4) do or do not have multiple sclerosis
5) identify as a member of any group that has been under-represented in research:

A man
A racialized group (previously referred to as a visible minority)
Two spirit, lesbian, gay, bisexual, transgender, queer, intersex or another term related to gender or sexual diversity (2SLGBTQI+)
Immigrated to Canada within the last ten (10) years
Live in a rural community of less than 10,000 people
Live with a disability that makes it hard to do the things you want and need to do everyday, at home and in your community
Exclusion Criteria:
You are not eligible to participate if you are:
1) Under age 18

Study Location

University of Calgary
University of Calgary
Calgary, Alberta
Canada

Contact Study Team

Study Sponsored By
University of Calgary
Participants Required
More Information
Study ID: REB26-0503