The Canadian Neuromuscular Disease Registry
Muscular Dystrophy | Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease)The Canadian Neuromuscular Disease Registry (CNDR) is a Canada-wide registry of people diagnosed with a neuromuscular disease. It collects important medical information from patients across the country to improve the understanding of neuromuscular disease and accelerate the development of new therapies.
The Canadian Neuromuscular disease registry (CNDR) encourages research that has tangible benefit to patients and promotes development of effective therapies for neuromuscular diseases including:
- Clinical Research that will improve patient care and best practices
- Scientific research that increases understanding of disease pathology
- Epidemiological studies to better understand the nature and burden of neuromuscular disorders
- Clinical trials of new therapies
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Participation Requirements
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Sex:
Male, Female, Intersex -
Eligible Ages:
0 and up
Participation Criteria
Inclusion Criteria:
Anyone diagnosed with a neuromuscular disease.
Exclusion Criteria:
Anyone not diagnosed with a neuromuscular disease.
Anyone not able to provide informed consent.
Study Location
University of Calgary
University of CalgaryCalgary, Alberta
Canada
Contact Study Team
- Study Sponsored By
- University of Calgary
- Participants Required
- More Information
- Study ID:
REB15-1447