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Nationwide Idiopathic Subglottic Stenosis Evaluation

Shortness of Breath

This study intends to determine how common idiopathic subglottic stenosis (iSGS) is across Canada, and to determine reasons why people develop the condition. The disease has increased from rare and newly described in the 1970s to a relatively common diagnosis in the last decade. The study investigators want to determine the incidence (number of new diagnoses per year) and prevalence (number of people living with the disease) in every province. This will help understand if there are certain areas with higher rates of disease and lead to new studies looking at factors causing the increased rate of disesae.

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Participation Requirements

  • Sex:

    Male, Female, Intersex

  • Eligible Ages:

    18 and up

Participation Criteria

Inclusion Criteria:
All adults (18 years of age or older) previously diagnosed with idiopathic subglottic stenosis are eligible for this study.
Exclusion Criteria:
You are not eligible to participate if you 1) Do not have subglottic stenosis. 2) Have subglottic stenosis caused by a known reason, for example autoimmune, prior surgery, prior intubation, congenital. 3) Have narrowing of the trachea below the subglottis. 4) Are less than 18 years of age.

Study Location

University of Calgary
University of Calgary
Calgary, Alberta
Canada

Contact Study Team

Study Sponsored By
University of Calgary
Participants Required
More Information
Study ID: REB22-1628