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Database for Stroke in Infants and Children: the International Pediatric Stroke Study

Cerebrovascular Accident | Focal Infarct

The International Pediatric Stroke Study (IPSS) was established in 2003 as a multi-center, multi-national clinical research registry. Over the years, it has grown to become a highly successful study vehicle for pediatric stroke research across over 100 institutions worldwide. Today, The IPSS continues to serve as the global clinical data and imaging core for multi-disciplinary pediatric experts who perform international collaborative research to better understand, prevent, and improve outcomes in pediatric stroke. The robust dataset and cohesive network enable high caliber and ground-breaking research in the field.

Participating sites enroll neonates or children who have had an ischemic stroke or are at high risk of having a stroke into the registry. Participants have their medical and research records reviewed for information about their stroke and abstracted into a secure electronic database called REDCap. The IPSS also provides an attractive imaging platform (through the Stroke Imaging Lab for Children, SILC, housed at SickKids) for sites to share clinically acquired brain images that will complement the clinical dataset. The clinical and imaging datasets will improve our understanding of the processes underlying plasticity and recovery in childhood stroke.

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Conditions de participation

  • Sexe:

    ALL

  • Âges admissibles:

    0 to 18

Critères de participation

Inclusion Criteria:

This registry will include all children from birth to 18 years of age who are diagnosed with stroke or a condition/disease (as defined below) that put them at high risk of stroke after Jan 1,2003 at one of the IPSS participating sites.

This registry will include children diagnosed with below stroke types:

* Arterial Ischemic Stroke (AIS),
* Cerebral Sinovenous Thrombosis (CSVT),
* AIS and CSVT
* Presume Preinatal Ischemic Stroke (PPIS)
* Children diagnosed with hemorrhagic stroke

Children at high risk of stroke include:

* Those diagnosed with arteriopathy, arteritis/vasculitis, moyamoya, dissection, sickle cell related infarcts).
* Brain arteriovenous malformations

Exclusion Criteria:

* Premature children diagnosed with AIS.
* Premature children diagnosed with PPIS
* Children diagnosed with TIA (Transient Ischemic Attack)
* Brain hemorrhage secondary to trauma
* Refusal to provide consent for participation

Lieu de l'étude

Hospital For Sick Children
Hospital For Sick Children
Toronto, Ontario
Canada

Contactez l'équipe d'étude

Primary Contact

IPSS Central

[email protected]
Étude parrainée par
The Hospital for Sick Children
Participants recherchés
Plus d'informations
ID de l'étude: NCT00084292