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CAPRI National Juvenile Idiopathic Arthritis Registry

Juvenile Idiopathic Arthritis (JIA)

Juvenile Idiopathic Arthritis (JIA) is a disorder of unknown cause characterized by chronic inflammation of the joints and other organs. It affects about 1 in a 1000 Canadian children and if untreated it can produce lifelong disability. The Canadian Alliance of Pediatric Rheumatology Investigators (CAPRI) includes most pediatric rheumatologists in Canada. They have successfully collaborated for the past 20 years producing groundbreaking research on the modern course and outcomes of JIA. The CAPRI JIA Registry is an ongoing universal registry of Canadian children with JIA that collects longitudinal data on disease course, outcomes and adverse events to inform healthcare decisions and to gain new insights into the disease and its treatment.

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Conditions de participation

  • Sexe:

    ALL

  • Âges admissibles:

    0 to 18

Critères de participation

Inclusion Criteria:

1. All patients newly diagnosed with JIA within the last 3 months
2. All patients who participated in the original ReACCh-Out study
3. LEAP study patients from 'newly diagnosed' and 'ReACCh-Out' cohorts who have completed their two year follow up in LEAP

Exclusion Criteria:

1. Patients with an unconfirmed JIA diagnosis
2. Patients diagnosed with JIA more than 3 months prior to the clinic visit, who were not followed in LEAP and /or ReACCh-Out studies.
3. If the family as a whole is unable to answer questionnaires in English or French

Lieu de l'étude

BC Children's Hospital
BC Children's Hospital
Vancouver, British Columbia
Canada

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McMaster University/McMaster Children's Hospital
McMaster University/McMaster Children's Hospital
Hamilton, Ontario
Canada

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Primary Contact

Michelle Batthish, MSc,MD,FRCPC

McGill University Health Centre
McGill University Health Centre
Montréal, Quebec
Canada

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Primary Contact

Gaëlle Chédeville, MD

University of Alberta
University of Alberta
Edmonton, Alberta
Canada

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Primary Contact

Dax Rumsey, MD, FRCP(C)

IIWK Health Centre
IIWK Health Centre
Halifax, Nova Scotia
Canada

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Primary Contact

Adam M Huber, MD

Hospital for Sick Children
Hospital for Sick Children
Toronto, Ontario
Canada

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Primary Contact

Brian Feldman, MD,FRCPC,MSc

Royal University Hospital
Royal University Hospital
Saskatoon, Saskatchewan
Canada

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Primary Contact

Mehul Jariwala, MD

University of Manitoba/Children's hospital research institute
University of Manitoba/Children's hospital research institute
Winnipeg, Manitoba
Canada

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Primary Contact

Lily Lim, MD, PhD

London Health Sciences Centre
London Health Sciences Centre
London, Ontario
Canada

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Primary Contact

Roberta Berard, MD

Université de Montréal
Université de Montréal
Montréal, Quebec
Canada

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Primary Contact

Jean Jacques De Bruycker, MD

University of Calgary / Alberta Children's Hospital
University of Calgary / Alberta Children's Hospital
Calgary, Alberta
Canada

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Primary Contact

Heinrike Schmeling, MD

Memorial University/Janeway Childrens Health and Rehabilitation Centre
Memorial University/Janeway Childrens Health and Rehabilitation Centre
St. John's, Newfoundland And Labrador, Canada
Canada

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Primary Contact

Paul Dancey, MD,FRCPC

Children's Hospital of Eastern Ontario
Children's Hospital of Eastern Ontario
Ottawa, Ontario
Canada

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University of Sherbrooke
University of Sherbrooke
Sherbrooke, Quebec
Canada

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Primary Contact

Alessandra Bruns, MD

Étude parrainée par
University of British Columbia
Participants recherchés
Plus d'informations
ID de l'étude: NCT03245801