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The Development and Evaluation of iCF-PWR for Healthy Siblings of Individuals With Cystic Fibrosis

Cystic Fibrosis | Mental Health | Internet-Based Intervention | Siblings

The goal of the clinical trial is to test whether a mental health program that is delivered through the Internet works well for healthy children and adolescents with siblings with cystic fibrosis (CF). The main questions it aims to answer are:

* Does the program improve the mental health and quality of life of healthy siblings?
* Does the program improve the relationship between healthy children and adolescents and their sibling with CF?
* Does the program help healthy siblings learn about CF?

Participants will:

* Fill out an online survey asking questions about their family and mental health before the program
* Complete the online mental health program over five weeks
* Fill out a weekly question asking about their mood for 10 weeks
* Fill out an online survey asking questions about their family and mental health after the program

Healthy children and adolescents with siblings with CF will be compared against themselves. Researchers will compare participants scores before starting the program with their scores during and after completing the program. Researchers hope to develop a program that improves mental health, quality of life, sibling relationships, and knowledge about CF.

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Conditions de participation

  • Sexe:

    ALL

  • Âges admissibles:

    8 to 12

Critères de participation

Inclusion Criteria:

* between the ages of 8 and 12
* have a child or adolescent sibling with cystic fibrosis
* able to speak and read English

Exclusion Criteria:

* have a severe cognitive impairment or a major comorbid medical or psychiatric illness, as this may have interfered with their ability to participate in the program and evaluation process required for the study.

Lieu de l'étude

University of Regina
University of Regina
Regina, Saskatchewan
Canada

Contactez l'équipe d'étude

Primary Contact

Kristi D Wright, Ph.D

[email protected]
Étude parrainée par
University of Regina
Participants recherchés
Plus d'informations
ID de l'étude: NCT06012084