Digital Health Pathway for Children With Medical Complexity Requiring Tracheostomy
TracheostomyThe DECIDE-T project is developing a standardized clinical pathway specifically for pediatric patients who require tracheostomy with or without long-term ventilation (tracheostomy/LTV). These patients represent a small portion of Alberta's population but account for over 50% of pediatric patients hospitalized for more than 180 days. The pathway will include a hospital-to-home directive that incorporates digital health solutions to provide support to families, caregivers, and healthcare professionals. Digital supports will include a Connect Care pathway, resources for informed decision-making, educational modules, high-fidelity simulations for family and caregiver education, an online parental resource center, and access to peer support within the hospital and community, as well as a post-discharge telehealth program.
The goal of the DECIDE-T project is to reduce hospital stays and associated costs for children requiring tracheostomy/LTV, as well as to decrease mental distress and burnout experienced by their caregivers and families.
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Conditions de participation
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Sexe:
ALL -
Âges admissibles:
0 to 18
Critères de participation
Inclusion Criteria:
* Age \< 18 years
* First tracheostomy placement
Exclusion Criteria:
-
Lieu de l'étude
Alberta Children's Hospital
Alberta Children's HospitalCalgary, Alberta
Canada
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Stollery Children's Hospital
Stollery Children's HospitalEdmonton, Alberta
Canada
Contactez l'équipe d'étude
- Étude parrainée par
- University of Alberta
- Participants recherchés
- Plus d'informations
- ID de l'étude:
NCT06375369