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BONAPH1DE, A Prospective Observational Study of Patients With Primary Hyperoxaluria Type 1 (PH1)

Primary Hyperoxaluria Type 1

The purpose of this study is to describe the natural history and progression of patients diagnosed with PH1, and to characterize the long-term real-world safety and effectiveness of lumasiran.

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Conditions de participation

  • Sexe:

    ALL

  • Âges admissibles:

    0 and up

Critères de participation

Inclusion Criteria:

* Documented diagnosis of PH1, per physician's determination

Exclusion Criteria:

* Currently enrolled in a clinical trial for any investigational agent

Lieu de l'étude

Clinical Trial Site
Clinical Trial Site
Toronto, Ontario
Canada

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Clinical Trial Site
Clinical Trial Site
Hamilton, Ontario
Canada

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Clinical Trial Site
Clinical Trial Site
Laurier, Quebec
Canada

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Étude parrainée par
Alnylam Pharmaceuticals
Participants recherchés
Plus d'informations
ID de l'étude: NCT04982393