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Genetic care for ALS in Canada

Neurological Disorders | Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease)

In this study we are collecting information about access to genetic testing and genetic care for ALS in Canada. This is a questionnaire study in which we will collect demographic and health information. This will inform how genetic care for ALS is provided across Canada and whether there are opportunities to recommend additional training, support, or resources to certain regions.

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Participation Requirements

  • Sex:

    Male, Female, Intersex

  • Eligible Ages:

    18 and up

Participation Criteria

Inclusion Criteria:
People who have a diagnosis of ALS, or a suspected diagnosis of ALS, are eligible to participate.
Participation of this study requires reviewing and signing a consent form.

Study Location

University of Calgary
University of Calgary
Calgary, Alberta
Canada

Contact Study Team

Study Sponsored By
University of Calgary
Participants Required
More Information
Study ID: REB24-1659