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National Collaborative to Improve Care of Children With Complex Congenital Heart Disease

Hypoplastic Left Heart Syndrome (HLHS)

The purpose of this initiative is to improve care and outcomes for infants with HLHS by expanding the NPC-QIC national registry to gather clinical care process, outcome, and developmental data on infants with HLHS between diagnosis and 12 months of age, by improving the use of standards into everyday practice across pediatric cardiology centers, and by engaging parents as partners in the process.

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Participation Requirements

  • Sex:

    ALL

  • Eligible Ages:

    0 to 1

Participation Criteria

Inclusion Criteria:

* Fetuses or newborns diagnosed with HLHS or other univentricular condition
* Intended to undergo Norwood procedure

Exclusion Criteria:

* None

Study Location

The Hospital for Sick Kids- University of Toronto
The Hospital for Sick Kids- University of Toronto
Toronto, Ontario
Canada

Contact Study Team

Backup Contact

Roxanne Kirsch, MD

[email protected]
Primary Contact

Alejandro Floh, MD

[email protected]
Study Sponsored By
Children's Hospital Medical Center, Cincinnati
Participants Required
More Information
Study ID: NCT02852031