Skip to content

World Bleeding Disorders Registry

Hemophilia A | Hemophilia B | Von Willebrand Diseases

The WBDR is an international observational disease registry of patients with hemophilia. It will provide a platform for a network of hemophilia treatment centres (HTCs) around the world to collect uniform and standardized patient data and guide clinical practice. With informed consent from the patient, the WBDR stores anonymous data about the person's disease, such as hemophilia type and severity, symptoms, and treatment.

null

Participation Requirements

  • Sex:

    ALL

  • Eligible Ages:

    0 and up

Participation Criteria

Inclusion Criteria:

* Patients of participating Hemophilia Treatment Centres with Hemophilia A or B, or von Willebrand Disease

Exclusion Criteria:

* none

Study Location

World Federation of Hemophilia
World Federation of Hemophilia
Montréal, Quebec
Canada

Contact Study Team

Primary Contact

Donna Coffin, M.Sc.

[email protected]
(514) 875-7944
Backup Contact

Emily Ayoub, Ph.D.

[email protected]
(514) 875-7944
Study Sponsored By
World Federation of Hemophilia
Participants Required
More Information
Study ID: NCT03327779