The Lupus Nexus Landmark Study.
Up to 20 sites in the US & 4 sites in Canada will enroll 3,500 participants into this study registry & bio-repository. They will be enrolled into 1 of 4 Lupus Cohorts (groups).
Most of the data collected will be collected from participants medical records.
Participants will complete questionnaires on-line, using the clinic computer or their own computer from home.
This registry does NOT provide medications.
Blood, urine, saliva & stool samples are collected at each visit and sent to the bio-repository in the US for future research. They will not be tested immediately. Results will not be available to participants.
The data & bio-samples will be kept by the Lupus Research Alliance for at least 15 years.
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Participation Requirements
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Sex:
Any -
Eligible Ages:
18 and up
Participation Criteria
Inclusion Criteria:
Lupus, diagnosed by a Rheumatologist.
Able to provide consent.
Study visits will be done at the same time as standard of care, in-person visits at the Kaye Edmonton Clinic.
Exclusion Criteria:
Unable to provide consent
Unable to make the study visits.
Pregnant at time of enrollment.
Study Location
University of Alberta
University of AlbertaEdmonton, Alberta
Canada
Contact Study Team
- Study Sponsored By
- University of Alberta
- Participants Required
- More Information
- Study ID:
Pro00145159