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Measuring Family Engagement in Care (The FAME Study)

Critical Care | Patient-centered Care | Family Engagement

There are currently no validated tools to specifically measure family engagement in the intensive care unit (ICU). To address this gap, an interdisciplinary team developed a novel instrument to measure family engagement in the ICU. This will be a prospective observational cohort with an embedded qualitative study to validate the FAMily Engagement (FAME) instrument in the ICU setting. This study will also evaluate the association between family activation, engagement, and family-centred outcomes, and exploring factors (age, relationship, sex, gender, race/ethnicity) that may influence family engagement in the ICU.

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Participation Requirements

  • Sex:

    ALL
  • Eligible Ages:

    18 and up

Participation Criteria

Inclusion Criteria:

* Family member of patient admitted to the intensive care units
* Able to participate in English or French
* Age 18 years old or older

Exclusion Criteria:

* ICU stays less than 24 hours
* Another family member has already participated in the study

Study Location

Foothills Medical Centre
Foothills Medical Centre
Calgary, Alberta
Canada

Contact Study Team

Royal Victoria Hospital
Royal Victoria Hospital
Montreal, Quebec
Canada

Contact Study Team

Primary Contact

Jillian Kifell, MSc

[email protected]
5143408222
Montreal General Hospital
Montreal General Hospital
Montreal, Quebec
Canada

Contact Study Team

St. Michael's Hospital
St. Michael's Hospital
Toronto, Ontario
Canada

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Jewish General Hospital / Lady Davis Institute
Jewish General Hospital / Lady Davis Institute
Montréal, Quebec
Canada

Contact Study Team

Backup Contact

Michael J Goldfarb, MD MSc

Primary Contact

Jillian Kifell, MSc

[email protected]
514-340-8222
Centre hospitalier de l'Université de Montréal (CHUM)
Centre hospitalier de l'Université de Montréal (CHUM)
Montreal, Quebec
Canada

Contact Study Team

Study Sponsored By
Lady Davis Institute
Participants Required
More Information
Study ID: NCT05659485