Transforming Care for Individuals with Childhood-onset Systemic Lupus Erythematosus

Participation Requirements

• Sex:

  ALL

• Eligible Ages:

  12 to 22

Participation Criteria

Inclusion Criteria:

* 1) be diagnosed with cSLE, meeting the revised American College of Rheumatology Classification Criteria for SLE by age 18 years
* 2) be between the ages of 12 and 22 years
* 3) in recognition of the heterogeneity of cSLE symptoms, have elevations in fatigue (i.e., T scores ≥60; or at least moderate symptoms, on the PROMIS measure) OR depressive symptoms (i.e., ≥10 on the PHQ-9), OR pain (i.e., average pain ≥3 out of 10 on the Pain VAS)
* 4) have English language proficiency (their primary caregiver can have English or Spanish language proficiency for the child to enroll)
* 5) those under age 18 years (US), or 16 years (Canada) must have a consenting caregiver

Exclusion Criteria:

* 1) other chronic medical conditions (e.g., juvenile arthritis)
* 2) a documented developmental delay, severe cognitive impairment, or thought disorder
* 3) an untreated major psychiatric illness (e.g., bipolar disorder, psychosis, severe depression (score ≥20) or active suicidal ideation (SI), based on the Pediatric Health Questionnaire (PHQ-9) items plus clinical interview; see Measures section)