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Lupus Landmark Study: A Prospective Registry and Biorepository

Lupus Nephritis | Systemic Lupus Erythematosus (SLE) | Neuropsychiatric Systemic Lupus Erythematosus

The purpose of the registry and biorepository is to provide a mechanism to store clinical data, linked biospecimens and molecular data to support the conduct of future research on Systemic Lupus Erythematosus (SLE), including Lupus Nephritis (LN).

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Participation Requirements

  • Sex:

    ALL
  • Eligible Ages:

    18 and up

Participation Criteria

Inclusion Criteria:

* Able to understand and comply with study procedures and voluntarily sign a written informed consent document
* Age 18 years or older at the time of enrollment
* Fulfill criteria for SLE based on one or more of the following classifications systems:

Systemic Lupus Erythematosus International Collaborating Clinic (SLICC) 2012 criteria; European Alliance of Associations for Rheumatology (EULAR)/American College of Rheumatology (ACR) 2019 criteria; 1997 revised ACR criteria; or Lupus is present per clinical assessment.

Exclusion Criteria:

* Not able to obtain consent
* Not able to meet protocol visit requirements
* Pregnant at the time of enrollment

Study Location

CHU de Québec - Université Laval
CHU de Québec - Université Laval
Quebec City, Quebec
Canada

Contact Study Team

Primary Contact

Nathalie Amiable

[email protected]
University Health Network/Toronto Western Hospital
University Health Network/Toronto Western Hospital
Toronto, Ontario
Canada

Contact Study Team

Primary Contact

Joanna Cichon

[email protected]
University of Calgary
University of Calgary
Calgary, Alberta
Canada

Contact Study Team

Primary Contact

Michaela Speirs

[email protected]
University of Manitoba
University of Manitoba
Winnipeg, Manitoba
Canada

Contact Study Team

Primary Contact

Rhonda Silva

[email protected]
204-787-1969
Study Sponsored By
Lupus Research Alliance
Participants Required
More Information
Study ID: NCT05934149