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Fetal Brain Conditions - Creating family centered outcome prediciton

Brain

When a brain problem is identified in a baby before it's born (medical term: fetus), doctors try their best to predict how the brain problem will affect the fetus and their family using information from fetal brain pictures (magnetic resonance imaging; MRI). We don't have data to tell us how well doctors predict outcomes based on fetal MRI. Before we can study how predictions and outcomes line up, we have to know what families want to be predicted. We need families with experience with a fetal brain problem to tell us what they wanted or wished to know during the pregnancy.

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Participation Requirements

  • Sex:

    Male, Female, Intersex

  • Eligible Ages:

    18 to 80

Participation Criteria

Inclusion Criteria:
Parent (of any sex or gender, birth parent or partner) who has experienced:
- a fetal brain problem diagnosed during the pregnancy
- regardless of the outcome of the pregnancy

Exclusion Criteria:
- fetal brain problems diagnosed only after birth

Study Location

University of Calgary
University of Calgary
Calgary, Alberta
Canada

Contact Study Team

Study Sponsored By
University of Calgary
Participants Required
More Information
Study ID: REB24-1464